Tuesday, December 30, 2008
We aren't sure of the exact time yet.
It will be a big one.
She will be in the hospital for 10 days.
As family and friends we are holing a fast on Sunday, January 4th in her behalf.
We ask that all who would like to please join us.
Wednesday, December 24, 2008
Friday, December 5, 2008
Wednesday, December 3, 2008
Of course 2 hours later than the scheduled time.
She had to fast after midnight.
Then she was supposed to drink 6 cups of juice/contrast.
She only made it though 5.
It made her SO SICK!
They finally called her back.
Then it's off the radiation at 11:30.
Today they start in on the radiation that is localized to the tumor site.
Hopefully it won't be harder on her.
Her EGD from yesterday didn't show anything abnormal.
We are hoping the same for the CT scan.
Tuesday, December 2, 2008
I drove Mom up on Monday.
Monday wasn't a good day.
She has a new pain in her upper stomach.
This is a very intense pain.
Her labs were good and back to almost normal.
But..the Doctor looked at her and told her that just from looking at her, he wasn't going to do the infusion.
He told her that she could start the chemo pill again.
So we did.
He called 10 minutes later and told us never mind.
He told her that he wanted a CT scan and a EGD to see if they could see what is causing the pain.
Today she has had a great day.
She vacummed the floor and took out the garbage.
She said it is the best she has felt in weeks.
Figures...the day she feels great, why not put her out and do a huge test???
That is where she is now.
Tomorrow is the CT scan.
We are counting down....
3 more treatments left!!!
Monday, November 24, 2008
Mom has been so sick!
Dr. Rich ordered blood work which showed that her liver enzymes were way too high.
So he ordered no chemo for week four.
Mom received lots of IV fluids.
It sure is nice to have a nurse who happens to be your Aunt come and help take care of you. Thanks LaNeeta.
Today the news was the same.
Liver enzymes are coming down but still too high... so no chemo for week five either.
This is a relief but also a little worrisome, we want to make sure we kill this beast.
The Dr told her not to worry.
He feels confident that we have been treating the cancer so aggressively, that the first 3 weeks of chemo have already killed everything.
So she can enjoy the week and have a good Thanksgiving.
She is feeling much better this week.
If the liver looks good next week, they will start chemo treatment again.
She has hated being so drugged up...so sometimes she tries to tough it out and not take a pill.
Not a good idea.
I think we have convinced her that she needs them.
She has been well loved these last few weeks.
So many meals, cards, and phone calls.
Thank you so much for loving our Mom too.
We appreciate all you do for her and for us.
We will be so happy to have this part of treatment behind us.
If you have to go through a trial like cancer,
it sure does help to have a great team giving you care.
We have been so happy with the great care the Radiation Team has given mom.
This is a molded pillow that holds her in the exact position so they can deliver the radiation in the right spot.
Saturday, November 15, 2008
Friday, November 14, 2008
I am thankful for the time that I got to spend helping out.
Thursday, November 13, 2008
In finding happiness we can not sit by passivly waiting for it to find us. We can be happy and find joy even in times of trial.
Les, you have never been one to sit back and watch the work. You are the first one to grab a shovel and dig in. Times that I have worked beside you, either cleaning a house or laying grass or whatever it may be, humor always seems to go hand in hand with the job being done. Its the attitude, the laughter, and the optimistic persistence.
During this ugly battle in your life right now, I think the same idea applies. Being discouraged and negative don't have to take over your life. I don't think that you'll let them. That's never been your style.
I hope that during this time you are able to laugh every time you cry, and cry everytime you laugh.
One of the hardest things to wrap your brain around through this whole journey has to be the hair issue.
I've heard a lot of people tell Mom... "at least it will grow back".
I don't care if it was long, short, curly or ugly.
Hair is so much your identity.
You can tell so much of what kind of a day someone is having from the way their hair looks.
So when it was time to go shopping for a wig, there was a crowd!
Michelle, Grandma, Grandpa, Dad, Jess, and me.
The wig lady wasn't very happy I don't think.
She asked us to please stand behind this "line" and she would bring Mom out as they tried on each one.
She soon learned that not much can hold this family back.
Especially not her invisible line.
We were soon crowded around the chair.
Picking keepers and getting rid of the no's.
We found a few that were great and finally settled on one.
We turned what should have been hard into a great time.
Do you think this red is too much for Grandpa?
The even better news came a few weeks later at chemo class.
They told her that she probably won't lose it now.
There is a chance...but so far so good!
Monday, November 10, 2008
It is so hard to be far away especially in times like these.
I want you to know how much we love you and how grateful I am to be part of such a tremendous family.
You are such a strong person. When I talk and listen to you, I draw from your strength everyday.
You are an amazing mother, grandmother, wife, sister, daughter, and friend.
We LOVE and miss you!!
The Roethel's are sending you some love!!
I have had the chance to spend Mom's second week of treatment with her.
Tomorrow is the last day of radiation this week.Then we go home.
A couple of things that I have seen in week two.
I have seen too much of these 4 walls around us in this room. We don't leave unless we are going to treatment or if we are in desperate need of food. I have watched more TV in the last week than I have in the last month.
I have seen Michelle come and love. She has brought numerous goodies, a beautiful handmade quilt and a microwave. Such a blessing to not have to walk out to the main lobby to use the shared one. That was often too. One of the side effects of the chemo is cold sensitivity. It is EXTREME. Water that is room temperature is painful for her to drink. It's strange to hear her say that she has to hurry and drink her water before it gets cold. Michelle also gave me the chance to go out for a quick shopping break. Thank you for being an amazing sister.
I have seen the terrible effects of chemotherapy and radiation. Don't get me wrong...I have never been more grateful for anything. The ability to cure this disease is a blessing. The effects that come along with that on the other hand, are awful. It is not a good feeling being helpless. I can do nothing for her except tell her that she can do it. She has to. She is tired, nauseous, claims to have "chemo brain", is cold, but hot, has not much desire to eat..but has to...then that starts a cycle of intense pain. But...with that being said ...
I have seen a brave and strong person. This is no surprise really. She has always been that way. She won't take crap from anyone. She isn't taking crap from cancer.She is enduring it well. She isn't complaining. Just enduring.I have seen her cell phone ring off the hook.She gets call after call. People checking in. Letting her know they care.So many people care. This is a tribute to the kind of influence she has. SO MANY PEOPLE!Thank you if you have been one of those.One of the most important lessons I believe I have learned from this so far is this...When something that is uncomfortable or unfamiliar, especially an illness or the like, happens to someone you know...the absolute best thing to do is something...anything.I'm not talking flowers and gifts.Just a call.No matter how much you care for or love a person, they cannot know that unless you tell them.Nothing is more awkward than when nothing is said.I should say that this is not at all coming from my mom.Just me and what I have personally experienced.
One phone call in particular brings this point home.
A phone call from a concerned acquaintance.Not really knowing Mom, just knowing that she could talk her through some stuff.She called when Mom was asleep, but I got the opportunity to talk with her for a while.She had almost an exact replica of Mom's cancer.Same age, same treatment, etc.
This happened to her 19 YEARS ago!
That is one good call to get!
This lady may have thought she would be bothering Mom. She may have not thought it was her place to call.She didn't hesitate.
She gives us so much hope!
I have seen many people with cancer. In the clinic where she gets radiation. Cancer knows no limits. There is just way too much of it!The nurse gave us both a pin that says "CANCER SUCKS".I have to agree...I have seen it with my own two eyes!
I have seen one of the most compassionate doctors ever. He dropped everything and rearranged a schedule to help her get through a really hard day.He even went and found a wheelchair for her...not asking the nurse to do it. He waited in the lobby for her. So cool.This was just so refreshing to see.
I have seen service. Haley and Grandma and Mark. I'm pretty sure my kid's had it better with me gone than with me there. I have a husband who doesn't complain. He just does it.Grandma is so impressed with him..she told me I better be good to him. I agree.I will do better.
I have seen the week go. Slowly but surely.One week closer to being done with this monster.One week closer to a normal, happy life for her.I think my compassion grew this week..actually I know it did.
I am now in a place I hoped to never be.
One week ago today my Mom was diagnosed with colon cancer.
Shock, fear, questions and tears pretty much sum up the last week for me.
The "fog" is thick and I feel like it is hard to breathe.
I think the not knowing is the hardest part.We aren't sure on exact details yet.
They won't know those until after surgery.
What we do know:It is definitely cancer.
It is grade 2...which from what I understand isn't super aggressive (at least "less"aggressive than it could be)
She will most likely have to under go a surgery, chemo, and radiation.
That her blood test and scan looked "good"...(as in they don't see any big signs that is has spread)
What we don't know:What stage the cancer is in.
What order those treatments will come in.
It is such a different thing when it is so close.
The pain inside is almost unbearable.
But there is hope.
Hope is the light that will begin to lead through the darkest hour. It will enable us to go forward.
There is hope because of our Savior.
He knows this feeling.
He knows my heart.
He knows hers.
He has shouldered this burden.
This exact one.
He is there to lift us.
He is there to guide.
He is aware of her.
Of our family in this exact moment.
He is making this known quite clearly through his tender mercies.
He is aware of her....She was guided to the right place to receive this news. There were people there who could talk to her about personal experiences that only they had. She received so much there. She filled an emotional well there to use up later.She works in the field of medicine. She has so many connections. Connections to doctors... to people who have done this...to people who know answers.She has friends who are going through and who have gone through this. She is talking to them and "running" into them almost every day.
He is aware of our family...My sister just moved to a new city. She has made great friends with a neighbor...who has a husband...who has done this very thing. She has someone to go to there. Someone who gets it.I have friends who have first hand experience with parents and cancer. They know where I am. They talk me off the edge almost daily.We have family. Namely the "sisters". Who came...and loved...and lifted ...and laughed.We have the other 3 sisters who just get it. They get the big, hard, ugly stuff and help us to remember to keep our heads where they should be.
One last one experience that I don't want to forget.On the day that I found out, I had just gotten home from taking Parker to school.
I was in an ugly, black place. I didn't know where to turn. I didn't know what to do.
I was pacing and Aubrei was crying.
There was a knock at the door. I didn't recognize the car in the drive way.I was not going to open the door. Not ready to face anyone right then.
Not 2 hours after this news.But I did. (Only because I had left the garage door open and they could see my car.)
I'm sure I was a sight.
Behind the door was the proof.
Proof that He is aware of me.
The Relief Society President and her counselor were standing there with a bag.
They had felt that they needed to stop and see how I was.
I didn't tell them.
I knew that I already had what I was supposed to get from them
They said they were bringing me some apples...and could I use some?
Well actually no...I didn't need apples. My dad owns a huge produce stand. I think most people in this small town know that. He has plenty of apples if I want them.
What I needed right then was love.
A message of love from my Father in Heaven.
Letting me know that his arms were there to hold me up.
Reminding me to be strong.
To rely on him.
And I am...completely.
**I am going with Mom tomorrow to her appointment with her oncologist. We will hopefully get a plan and some more information. Please remember her in your prayers.
Our prayers are with her & all of you, JaLee. These are tough times, but you have the right attitude. Heavenly Father will bless you - I felt his arms around me many times when I was going through our trials this summer with dad. I still do. Kirk & I both hope for the very best for your mom and that she will have the courage and strength to get through it.
This is proof that you really are stronger than you think you are. You will all bear this triumphantly and you will all come out on top. We love you guys and are praying for you constantly. Our Savior is with you, and he will not leave your side. John 14:18 SDLY
Haley is right. Everything we have been through you have experienced with us. You know how to be brave, you know where to turn for peace. You are already more amazing than you think you are. D&C 121: 7-9. SDLY
Beanie,Here I am at 9:41pm doing my "favorite reading", the niece's blogs. I am hooked.You summed up this past week for us pretty accurately. Thank you for doing that. I have had a pretty heavy heart since the news. You never want to hear the "C" word, but here it is, close to home and close to our hearts. It is more than I can bear. I wish I could do it for her. Your mom has been there for me, always, fiercely loyal and steady, the rock of this family and someone we all lean on.One thing I know for sure is that Heavenly Father is going to take good care of her. I really know that. Our job is to give back to her. I told your mom to keep a journal of miracles, because they are and will keep happening. You don't want to forget.Hang in there Beanie! We are all praying for her,you, Jess, Jayden and your dad.Let's learn our own lessons from this.I love you Beanie!
"Call it a class, call it a network, call it a tribe, call it a family. Whatever you call it, whoever you are, you need one." -Jane HowardI call it blessed! Some say you can pick your friends, but you can't pick your family...I disagree; there is no such thing as luck. I'm glad I was home at Gma Kayes when your mom walked in the house and into Gpa's arms. Your mom sobbed, and a tear ran out of the corner of Gpa's eye. He understood her pain.I'm glad I was in the waiting room at the cancer clinic when your big-hearted dad swore us to secrecy.When the chips are down the family knows how to rally and there is no doubt in my mind that we will be blessed and that the "Mean Aunt" will prevail.